A Little Update

So, we’ve been home for a week from the hospital and things are just okay.  I’d give it a “C” overall.

The first few days were spent figuring out a new routine at the house.  Making sure he was comfortable, getting into a routine with pain medication and adjusting to doing the IV medication in bed.  We were optimistic that the follow up appointments would bring great news this week, but they ended up being rather disappointing.

We met with the orthopedist on Monday who was unhappy with the swelling and proceeded to drain another 90 cc’s of fluid from the knee right there in the office.  I think we’re six for six on draining the knee during these visits.  It’s so painful for Chris, and even though it helps with the swelling and takes away some of the pain, it’s no fun for him.  We won’t see him again for another three weeks barring any further complications or additional swelling/pain.

Here he is taking his wheels for a spin going to see the doctor:

On Monday, he also had to do more blood work.  Hooray, he’s a vampire!!  He’s become such a pro with the blood giving these days.  He even tells the nurse the best veins to use and he’s usually right.

Those two appointments wiped him out on Monday.  Understandable if you ask me.

I kind of went back to work this week as well.  I’m incredibly lucky to have a job I can do pretty much anywhere, so I have been juggling working from home with a few hours in the office over the past few days.

Wednesday we were really looking forward to the appointment with the infectious disease doctor because we were getting back the lab work and would find out if the antibiotics are working and if he is progressing.  Long story short:  The doc wasn’t happy with how the test results came back.  His white blood cell count went up, not down, and his liver enzymes are elevated.  Just not what we expected at all, and quite honestly, it was just disappointing.  I so wanted to hear great news, that the antibiotics were killing the crap out of the infection, and that we are on the up and up.  Instead, it was just UGH.  Doc just said we need to be patient and we’ll reevaluate at next weeks appointment.

Then, the nurses cleaned up his picc line to get us through another week.  Again, UGH.  It’s just not fun.

Oh yeah, he had physical therapy on Wednesday which went well.  He’ll be doing that three times a week for the next few weeks as he works to improve his mobility.

Late on Wednesday evening, the infectious disease doctor called us after reviewing his labs further,  and he explained that he wanted Chris to have an ultrasound of his liver to rule out any infection today.  I suppose this is a direct result of the elevated enzymes in his blood work.  We went this morning to get that done and don’t have the results back yet.  At least he represented DC well in NC.  :)

Someone is ready for football, no?  We’re thinking of pimping out his walker.  Any ideas?

Today, we got another fun surprise in my mail from some of my family.  Crumbs cupcakes!  ZOMG, so delicious, and after a bleh day yesterday, they really lifted our spirits.  They are just so cute and pretty.  We also got some chocolate covered oreos AND an edible arrangement of awesome fruit earlier this week.  Thank you so much for the thoughtful treats you guys!  :)

My parents are currently en route to NC where they will spend the weekend, and my mom will stay through Labor Day.  It will be such a relief to have some help and additional support over the next ten days, and I am so grateful.

That’s about it for now.  Fingers crossed for good test results from the liver ultrasound, and even better test results for next weeks upcoming lab work.

Hope all is well in your world.  :)

How We Got Here

Over the past few days, people have asked me what happened with Chris, and why we ended up in the hospital.  I realized that I never told the entire story, I just jumped in the day after he had been admitted.

Chris had surgery on August 1st to remove a screw from his knee that had been placed during ACL surgery in 2007.  It was supposed to dissolve, but never did, so it was floating around and irritating him, making it necessary to come out.  It was an out-patient procedure and everything went smoothly.

A week passed and he was recovering nicely.  He had some pain, but it was relatively normal.  All of the post-op appointments went well with the doc and he was happy with how the recovery was progressing.  We scheduled a physical therapy for the following Monday to begin working on his movement, and we were on our way.

The next day, things changed.

Friday night, August 10th, just nine days after his surgery and well into recovery, his pain skyrocketed to a 10 out of 10.  It was unbearable.  He writhed in the bed, yelling and cursing.  I gave him the prescribed pain medication, we elevated it, we put ice on it…nothing helped.  Nothing.

We tried to get through the night, but the pain never subsided.  Finally, on Saturday afternoon, I convinced him to let me take him to the ER.

I knew he had reached his limit when he gave in and agreed to go to the hospital, and I was so relieved when they took him back to a room as soon as I wheeled him into the building.  They took his vitals, asked some questions, and gave him a shot for the pain.  Nothing worked.

The ER called the surgeon who did the original surgery and he was at the hospital within the hour.  When he walked into the room, he immediately looked concerned.  We had seen him less than 24 hours before for a routine follow-up, and here we were in the ER with intolerable pain.

Doc took one look at Chris and pretty much prepared us for the idea that emergency surgery might be necessary.  Blood tests were ordered and fluid was drained from his knee.  Actually, a lot of fluid was drained from the knee.  105 cc’s to be exact, which coming from the body, is a lot of freaking fluid.

Two hours and a number of tests later, the doc gave us the inevitable news:  Infection had been identified by his white blood count, as well as the fluid they took from the knee, and surgery was necessary that very moment.

When the decision was made, the activity really picked up.  We made phone calls to family, got him changed into a gown, packed up his belongings, and doctors filed in and out of the room following protocol and prepping him for the surgery.

It was surreal.  I felt like we were watching someone elses life.  We went through the motions and did as directed.  We went to the hospital seeking pain medication and a follow-up with the doctor, not surgery.

Less than an hour later, the surgery was underway, while I waited in the silent lobby for two hours.  Finally, Doc came out and said that everything went well.  They removed some more tissue and cleaned the infection with 15 liters of fluid.  Doc was happy and confident this would be the turning point towards getting well.

He escorted me to recovery where all of the beds were empty except for Chris’.  On a Saturday night, there were no other surgical patients, so Chris had all of the nurses to himself.  He did much better with the anesthesia this go around and within an hour, was awake and talking and blissfully saying that his pain was a zero.  Thank you lord.

They immobilized his knee, had him on IV fluids and a drip of Dilaudid which would keep the pain at bay.  Once the nurses were satisfied with his pain level, oxygen sats, temp and blood pressure, we were taken up a few floors to his room.  The staff greeted us nicely and got him settled in and as comfortable as he could be considering the circumstances.

I stayed with him until about 1:30am when I had to go home to deal with the dog and get a few things to bring back in the morning.  It was hard, having to leave, but I knew that the nurses would take great care of him, and I would be worthless with no rest.

What followed over the next six days can be seen here, here, and here.

We got into a routine during our time at the hospital.  I would leave late and arrive early, we’d meet with the orthopedic surgeon each morning as he evaluated his progress, and there would be tests.  Lots and lots of tests.  Blood would be drawn upwards of four times a day, medication would be administered as pain came and went, fevers would be fought, and physical therapy would be had.

I think hands down, this experience was one of the most difficult and challenging times in our lives.  We’re young.  We’re newlyweds.  We’re just a couple who are trying to make a better life for ourselves.  This kind of stuff shouldn’t be happening to us.  It was dumb and bad luck and something that really changed the course of our lives temporarily.

So what was the ultimate diagnosis?  Staph infection deep in the joint.  It didn’t start from the outside and go in, it started inside and stayed inside.  The strain is MSSA to be exact.  It’s in the same family as MRSA, just slightly easier to treat.  And by easier, I mean not easy at all.

We both sat with our mouths wide open when the infectious disease doctor told us that he may have to go home with an IV, and that he would need IV antibiotics for up to six weeks.  The IV is called a PICC line and is placed in a vein in his arm (near his bicep), and travels up into his chest info a large vein near the heart.  Why a PICC line as opposed to a normal IV in his hand?  PICC lines can last months as opposed to normal IV’s which have to be changed every three days.  I had never heard of such a thing.  I doubted my ability to care for him, and I was afraid to administer the medication.  I tried my best not to be scared in front of Chris, but there were tears, and the feeling of being overwhelmed swallowed me up, but ultimately,  I got through it.

They did the procedure on Thursday which meant two things:

1.  Freedom

2.  Home IV antibiotics

I quickly got over my fear of doing everything at home because I was so happy that he would be able to come home.

So now, this is our life:  IV tubing, saline syringes, heparin, alcohol swabs and antibiotics:

Yesterday was our first full day home, which meant little sleep and doing the IV at home for the first time.  It’s nearly impossible for Chris to get comfortable, and we’re up every few hours to ease the pain with medication and ice, but each day is better than the last, which I think we both consider to be an improvement.

As far as administering the medicine through the IV, it’s not so bad.  They make it pretty easy, and there are no needles involved (just hooking up syringes), so it’s just a matter of me following things step by step to ensure everything is done correctly.

We’re settling into this new way of life.  We know it’s temporary, but we also know that it’s important that we take our new roles very seriously in order for him to recover 100%.  We realize that our lives will eventually go back to normal, but for now, this is our reality:

The good thing about the antibiotics only need to be given once a day, and from start to finish it only takes about 30 minutes.  It takes me about 15 minutes to get setup and go through the steps, and then it takes about 15 minutes for the meds to actually do their thing through the IV.  Crazy, right?

So that’s our story.  The rest of the journey will consist of weekly trips to infectious disease so they can run his blood work and make sure the infection is subsiding.  We’ll also follow-up with the surgeon to make sure that he’s healing okay, and lastly, he’ll be doing physical therapy to ensure that his knee heals properly as a result of everything he’s been through.

Let me just brag about Chris real quick.  He has been so ridiculously tough through all of this.  While I have been the one to feel overwhelmed and cry at the drop of a hat, he has been amazing, strong and calm.  He worries about me when I worry about him and he tells me loves me over and over.  This entire experience has been scary and tough, but it’s also brought us even closer than I thought possible.  Like I say, every time I don’t think we can get any closer, we do.  In these moments, I truly love and respect marriage even more.

So we push forward in this adventure, and progress.  We have a little countdown going, and we plan on celebrating with a nice romantic dinner date once this is all done.  We have 38 days left on the antibiotics/PICC line, and then you better believe that we’ll be gussying up and toasting the end of this chapter.

Day Five

It’s amazing how being in a hospital can become sort of a time warp.  The days are all starting to blend together and it’s becoming one big blur.

This morning, I was anxious to create our plan for the day:

Blergh.  We weren’t too successful with todays plan, so that was kind of a bummer.  Basically, the only things that were accomplished were #1, #5 and #6.  We never made it outside for a walk (pain is high today, and physical therapy is making him sore), the PICC line is being placed tomorrow, and we couldn’t find playing cards to play Gin Rummy.  I think tomorrow’s list is going to have to be a little more attainable, with number one being GO HOME!!

Chris’ parents arrived today which has been a big help to me.  I was able to go home and clean up the house and do some stuff to get ready for him to come home, so that was great.  It was just a relief to know that he wasn’t at the hospital alone.

Tonight, we had a little visitor which was unexpected and completely heart warming.  I opened the door after we were finished eating dinner, and Gus was standing right outside of the door.

We talked to Gus and his owner for about 10 minutes and it was just a really sweet experience.

Instead of making our way outside for a walk, we hit the halls instead.

Check out Chris’ new wheels:

Sexy, right?

It’s been tough watching him go through all of this.  The infection is still in his knee, so he has pain that continues from that, plus he’s still recovering from surgery and is also dealing with being sore from physical therapy.  It’s just been so much, and I can’t believe we have been here for five days.

We were talking this morning about how this all sort of feels so surreal.  We have no concept of time, weather, day of the week…there is a world going on outside of his room and we’re not really part of it.  It’s so bizarre.  It has been incredibly overwhelming, these past few days…I just have to remember to take really deep breaths sometimes to get through the hours.   His neighbors have come and gone and here we sit.  It’s frustrating.

The rumor is that he’s going to get his long-term IV put in in the morning and then hopefully, he’s going to get released.  Doc wants to double-check the knee to make sure the swelling and pain are under control, and he may have to drain it again to make him a little more comfortable, but hopefully not.

Fingers and toes crossed that we get to taste freedom sooner than later.

Plan for Today

I think Chris is the youngest person on this hall of the hospital.  Sometimes, I feel like we’re in the middle of our own personal frat party because we are loud compared to everyone else.  Even through all of the chaos, uncertainty, fear and sickness, we have found time to laugh and be ourselves.  I hope we’re not bothering the rest of the patients, but hey, laughter is good for the soul, right?

Today, he had physical therapy for the first time since being admitted to the hospital.  He did awesome and his physical therapist is great. and as an added bonus, she’s here all week, so we get to keep her!  Tonight, when we walked the halls, we made up a little game where he would touch the wall at the end of the hall in order for the walk to count.  I think tomorrow we should add a high five at the end of each lap.  Gotta keep it fun over here.

Yesterday, I noticed the whiteboard in his room with his nurses names had a really big blank spot on it in the “plan for today” box.  It made me sad, so I came up with a plan:

Today, I came up with an even bigger plan:


Turns out, putting these little lists on the whiteboard where we could see them 24/7 helped.  We accomplished everything on the list and it’s fun to think of creative things to strive for.

We’re going to be here for a few more days.  What would YOU add to the list?


The Rhythm of the Hospital

Throughout my life, I’ve always thought hospitals have had a certain rhythm to them.  There is a flurry of activity, a hum of voices and a little community of people doing their jobs and supporting their loved ones.

Yesterday, when we brought Chris to the ER, that rhythm was off from the very beginning.  It was eerily quiet in the ER, so they thankfully were able to get him right back to be seen, but it still just felt different.  Everything was moving so quickly as his pain was spiraling out of control.  For two hours, as we waited for the original surgeon who operated on him a week ago to arrive, the pain refused to subside.  Three shots of Dilaudid provided zero relief and it threw off the rhythm even more.

After running blood tests and tests on the fluid in his knee, it was determined that he had infection.  Possibly MRSA, in fact (it’s in the staph family if you’re not familiar).  Suddenly, a trip to the ER in hopes of pain relief was turning into emergency surgery.  Was it life or death?  No.  Was it urgent and something that couldn’t wait?  Yes.

The doc assembled his team, as people came in from their homes to perform the surgery.  There were questions from us, questions from them, all part of a rhythm that was unfamiliar.

I followed the team as they rolled the bed down the quiet hall at 8pm, kissed Chris, and told him I loved him as they rolled him into the OR.  One of the anesthesiologists escorted me to the waiting room, where I sat down and finally exhaled with relief.  He was in great hands.  They were fixing him.  It was going to get better, soon.

It was odd, being in a dimly lit waiting room all alone.  Apparently emergency surgeries aren’t all the rage here, so he was the only one in surgery on a quiet Friday night.

I sat alone for those two hours, trying to shake off the unfamiliar rhythm of flying solo in a place that’s normally filled with voices and action.  I thought about how things had unfolded and how the past two months of his pain had led us to this moment.  All unpredictable, and all out of our control.  All of these things had led us here; him on an operating table and me anxiously waiting.

In recovery, the rhythm shifted.  Everything became calm and warm.  Fuzzy, almost.  He had the recovery room all to himself with two nurses doting on his every need.  He was pain-free, happy and calm; all welcome things after the week he has had.  He came out of the anesthesia so well that he was able to be taken to his private room just an hour later.

We arrived to a corner room with a nice little window, and he happily approved of his accommodations.  We got him settled and acclimated to his nurses, and then, I went home to a bed where I could rest and to our animals who needed me.  Six hours later, I was back at the hospital greeting a sheepishly happy man.  I walked in the door and he said, “well aren’t you a sight for sore eyes.  I missed you.”  Ditto, love.

Through such a time of uncertainty and fear, there had been calm and comfort in these last 24 hours for which I am thankful.

We will be here for a few days as he recuperates.  In sickness and in health, this is just one of the pieces of marriage.  He’s comfortable in his bed, his pain is under control, he’s soundly sleeping, and the rhythm is finally restored.