Over the past few days, people have asked me what happened with Chris, and why we ended up in the hospital. I realized that I never told the entire story, I just jumped in the day after he had been admitted.
Chris had surgery on August 1st to remove a screw from his knee that had been placed during ACL surgery in 2007. It was supposed to dissolve, but never did, so it was floating around and irritating him, making it necessary to come out. It was an out-patient procedure and everything went smoothly.
A week passed and he was recovering nicely. He had some pain, but it was relatively normal. All of the post-op appointments went well with the doc and he was happy with how the recovery was progressing. We scheduled a physical therapy for the following Monday to begin working on his movement, and we were on our way.
The next day, things changed.
Friday night, August 10th, just nine days after his surgery and well into recovery, his pain skyrocketed to a 10 out of 10. It was unbearable. He writhed in the bed, yelling and cursing. I gave him the prescribed pain medication, we elevated it, we put ice on it…nothing helped. Nothing.
We tried to get through the night, but the pain never subsided. Finally, on Saturday afternoon, I convinced him to let me take him to the ER.
I knew he had reached his limit when he gave in and agreed to go to the hospital, and I was so relieved when they took him back to a room as soon as I wheeled him into the building. They took his vitals, asked some questions, and gave him a shot for the pain. Nothing worked.
The ER called the surgeon who did the original surgery and he was at the hospital within the hour. When he walked into the room, he immediately looked concerned. We had seen him less than 24 hours before for a routine follow-up, and here we were in the ER with intolerable pain.
Doc took one look at Chris and pretty much prepared us for the idea that emergency surgery might be necessary. Blood tests were ordered and fluid was drained from his knee. Actually, a lot of fluid was drained from the knee. 105 cc’s to be exact, which coming from the body, is a lot of freaking fluid.
Two hours and a number of tests later, the doc gave us the inevitable news: Infection had been identified by his white blood count, as well as the fluid they took from the knee, and surgery was necessary that very moment.
When the decision was made, the activity really picked up. We made phone calls to family, got him changed into a gown, packed up his belongings, and doctors filed in and out of the room following protocol and prepping him for the surgery.
It was surreal. I felt like we were watching someone elses life. We went through the motions and did as directed. We went to the hospital seeking pain medication and a follow-up with the doctor, not surgery.
Less than an hour later, the surgery was underway, while I waited in the silent lobby for two hours. Finally, Doc came out and said that everything went well. They removed some more tissue and cleaned the infection with 15 liters of fluid. Doc was happy and confident this would be the turning point towards getting well.
He escorted me to recovery where all of the beds were empty except for Chris’. On a Saturday night, there were no other surgical patients, so Chris had all of the nurses to himself. He did much better with the anesthesia this go around and within an hour, was awake and talking and blissfully saying that his pain was a zero. Thank you lord.
They immobilized his knee, had him on IV fluids and a drip of Dilaudid which would keep the pain at bay. Once the nurses were satisfied with his pain level, oxygen sats, temp and blood pressure, we were taken up a few floors to his room. The staff greeted us nicely and got him settled in and as comfortable as he could be considering the circumstances.
I stayed with him until about 1:30am when I had to go home to deal with the dog and get a few things to bring back in the morning. It was hard, having to leave, but I knew that the nurses would take great care of him, and I would be worthless with no rest.
What followed over the next six days can be seen here, here, and here.
We got into a routine during our time at the hospital. I would leave late and arrive early, we’d meet with the orthopedic surgeon each morning as he evaluated his progress, and there would be tests. Lots and lots of tests. Blood would be drawn upwards of four times a day, medication would be administered as pain came and went, fevers would be fought, and physical therapy would be had.
I think hands down, this experience was one of the most difficult and challenging times in our lives. We’re young. We’re newlyweds. We’re just a couple who are trying to make a better life for ourselves. This kind of stuff shouldn’t be happening to us. It was dumb and bad luck and something that really changed the course of our lives temporarily.
So what was the ultimate diagnosis? Staph infection deep in the joint. It didn’t start from the outside and go in, it started inside and stayed inside. The strain is MSSA to be exact. It’s in the same family as MRSA, just slightly easier to treat. And by easier, I mean not easy at all.
We both sat with our mouths wide open when the infectious disease doctor told us that he may have to go home with an IV, and that he would need IV antibiotics for up to six weeks. The IV is called a PICC line and is placed in a vein in his arm (near his bicep), and travels up into his chest info a large vein near the heart. Why a PICC line as opposed to a normal IV in his hand? PICC lines can last months as opposed to normal IV’s which have to be changed every three days. I had never heard of such a thing. I doubted my ability to care for him, and I was afraid to administer the medication. I tried my best not to be scared in front of Chris, but there were tears, and the feeling of being overwhelmed swallowed me up, but ultimately, I got through it.
They did the procedure on Thursday which meant two things:
2. Home IV antibiotics
I quickly got over my fear of doing everything at home because I was so happy that he would be able to come home.
So now, this is our life: IV tubing, saline syringes, heparin, alcohol swabs and antibiotics:
Yesterday was our first full day home, which meant little sleep and doing the IV at home for the first time. It’s nearly impossible for Chris to get comfortable, and we’re up every few hours to ease the pain with medication and ice, but each day is better than the last, which I think we both consider to be an improvement.
As far as administering the medicine through the IV, it’s not so bad. They make it pretty easy, and there are no needles involved (just hooking up syringes), so it’s just a matter of me following things step by step to ensure everything is done correctly.
We’re settling into this new way of life. We know it’s temporary, but we also know that it’s important that we take our new roles very seriously in order for him to recover 100%. We realize that our lives will eventually go back to normal, but for now, this is our reality:
The good thing about the antibiotics only need to be given once a day, and from start to finish it only takes about 30 minutes. It takes me about 15 minutes to get setup and go through the steps, and then it takes about 15 minutes for the meds to actually do their thing through the IV. Crazy, right?
So that’s our story. The rest of the journey will consist of weekly trips to infectious disease so they can run his blood work and make sure the infection is subsiding. We’ll also follow-up with the surgeon to make sure that he’s healing okay, and lastly, he’ll be doing physical therapy to ensure that his knee heals properly as a result of everything he’s been through.
Let me just brag about Chris real quick. He has been so ridiculously tough through all of this. While I have been the one to feel overwhelmed and cry at the drop of a hat, he has been amazing, strong and calm. He worries about me when I worry about him and he tells me loves me over and over. This entire experience has been scary and tough, but it’s also brought us even closer than I thought possible. Like I say, every time I don’t think we can get any closer, we do. In these moments, I truly love and respect marriage even more.
So we push forward in this adventure, and progress. We have a little countdown going, and we plan on celebrating with a nice romantic dinner date once this is all done. We have 38 days left on the antibiotics/PICC line, and then you better believe that we’ll be gussying up and toasting the end of this chapter.